As “Health 2.0” tools – such as healthcare apps on smartphones – become more common, it’s increasingly important for both developers and patients using these tools to learn how HIPAA protects patient medical data. Yet it is not entirely clear how HIPAA intersects with many emerging services that use digital health data. CDT launched a project to get information on what areas of HIPAA are unclear to the Health 2.0 community. If you’re a healthcare provider, Health 2.0 developer, or e-patient, and you have questions about how HIPAA affects your rights and services, please submit them to CDT. We will use these questions to urge the Office of Civil Rights (which enforces HIPAA) to provide more clarity.
Coalition Urges Senate Not to Let Companies Waive Financial Regulations for AI
CDT joined AI Now Institute, American Civil Liberties Union, and several organizations dedicated to tech policy, consumer protection, and civil rights in a letter to Senate leadership and the Senate Banking, Housing, and Urban Affairs Committee opposing the “AI Innovation Labs” language in Sec. 10509 of the CLARITY Act.
CDT and Partners Urge Passage of the California Location Privacy Act of 2025 (AB 322)
Location data is particularly sensitive, and when collected across time it can reveal a broad range of intrusive insights such as medical conditions, sexual orientation, political activities, and religious beliefs.
CDT and Allies Urge FCC Not to Violate Privacy of Cell Phone Buyers
CDT and EPIC led a coalition of 15 organizations in urging the FCC not to require phone companies to collect government IDs, physical addresses, and alternate phone numbers from every phone subscriber in the country.