Comments on Use of Health Information in Federally Funded Research
The Center for Democracy & Technology (CDT), through its Health Privacy Project, submitted comments in response to HHS’ July 26, 2011 Advance Notice of Proposed Rulemaking (ANPRM) on Human Subjects Protections: Enhancing Protections for Research Subjects and Reducing Burden, Delay and Ambiguity for Investigators.
As a result of our leadership of the Tiger Team, we played a major and influential role in shaping and subsequently writing the recommendations of the Tiger Team and Policy Committee on this ANPRM. These comments serve to offer our endorsement of the recommendations made in that letter, to reinforce a number of its points, and to submit our own recommendations in several areas not addressed by the Policy Committee. These areas include the treatment of identifiable and de-identified data; extending the scope of the Common Rule; and the proposal to harmonize HIPAA and the Common Rule where such consistency would be beneficial.
Coalition Urges Senate Not to Let Companies Waive Financial Regulations for AI
CDT joined AI Now Institute, American Civil Liberties Union, and several organizations dedicated to tech policy, consumer protection, and civil rights in a letter to Senate leadership and the Senate Banking, Housing, and Urban Affairs Committee opposing the “AI Innovation Labs” language in Sec. 10509 of the CLARITY Act.
CDT and Partners Urge Passage of the California Location Privacy Act of 2025 (AB 322)
Location data is particularly sensitive, and when collected across time it can reveal a broad range of intrusive insights such as medical conditions, sexual orientation, political activities, and religious beliefs.
CDT and Allies Urge FCC Not to Violate Privacy of Cell Phone Buyers
CDT and EPIC led a coalition of 15 organizations in urging the FCC not to require phone companies to collect government IDs, physical addresses, and alternate phone numbers from every phone subscriber in the country.
