Always On: The Digital Patient

Data-driven and information-based systems have quickly become the new paradigm for American health care. Using the vast amounts of data produced from both traditional healthcare records and newer commercial sources like mobile health apps, the techniques of big data analysis have enormous potential to continue transforming healthcare.

On Thursday, January 29, 2015, the Center for Democracy & Technology (CDT) will host Always On: The Digital Patient. At the event, we will convene leading experts in health privacy to do a deep dive on current and emerging issues, informing policy and regulatory issues in the coming year.

Some of the issues we’ll explore include:

• The implications of government use of citizen health data
• The emergence of wearables and body monitoring devices
• Challenges and opportunities of e-health
• The increasing role of third parties in health, from app developers to physician “extenders”

The program will kick off with fire starter remarks, followed by engaging small group discussions, and closing with an experts-led discussion including distinguished panelist Julie Brill, Commissioner at the Federal Trade Commission.

Fire starter: Ben Heywood, co-founder, PatientsLikeMe.com

Ben will give an overview of the various provocative and important issues in digital health, as well as an argument for open data without restriction.

Panelists:

Julie Brill, Commissioner at the Federal Trade Commission

Nicolas Terry, Professor of Law & ­Director of the Hall Center for Law and Health, Indiana University Robert H. McKinney School of Law

Corrine Carey, Assistant Legislative Director, New York Civil Liberties Union

Chris Boone, Executive Director, Health Data Consortium

Moderator:

Michelle De Mooy, Deputy Director, Consumer Privacy, Center for Democracy & Technology