Last Wednesday, CDT convened a breakfast panel discussion on health information privacy at the San Francisco office of the law firm of Manatt, Phelps and Phillips LLP. The panel combined both California and national health IT expertise and featured Jonah Frolich, California Deputy Secretary for Health Information Technology; Alex Kam, Acting Director of the California Office of Health Information Integrity (OHIII); David Lansky, President and CEO of the Pacific Business Group on Health; John Mattison, M.D., Chief Medical Information Officer of Kaiser Permanente; Deven McGraw, CDT’s Health Privacy Project Director; and Julie Murchinson, Managing Director of Manatt Health Solutions. Leslie Harris, President and CEO of CDT, moderated a discussion that quickly became an active one among both panelists and attendees.
The focus was initially on California and a recent paper released by CalOHIII largely raising concerns about “secondary” uses of health data (the paper will be available online shortly, check back here for a link). Such uses are often cited as raising greater privacy concerns. Yet the use of data for secondary (beyond individual treatment) purposes – such as for quality measurement and comparative effectiveness research – are key to achieving greater health system reform, raising the question of whether they should be relegated to secondary status.