Janlori Goldman founded the Health Privacy Project in December 1997. The Project is dedicated to ensuring that people’s privacy is safeguarded in the health care environment.
Ms. Goldman is also on the Research Faculty at the Center on Medicine as a Profession at Columbia University’s College of Physicians and Surgeons.
In 1997, Ms. Goldman was a Visiting Scholar at Georgetown University Law Center. In 1994, Ms. Goldman co-founded the Center for Democracy & Technology. Ms. Goldman also worked at the Electronic Frontier Foundation in 1994. From 1986 to 1994, Ms. Goldman was the staff attorney and Director of the Privacy and Technology Project of the American Civil Liberties Union. While at the ACLU, Ms. Goldman led the effort to enact the Video Privacy Protection Act and led efforts to protect health, credit and financial information and personal information held by the government. She was the Legislative Director of the Minnesota affiliate of the ACLU from 1984-86.
Ms. Goldman has testified frequently before the U.S. Congress, and has served on numerous commissions and advisory boards. Her publications include:
- “Bioterrorism, Public Health and Privacy,” included in Lost Liberties: Ashcroft and the Assault on Personal Freedom, published by The New Press, 2003
- Genetics and Privacy, American Journal of Law & Medicine, vol. 28 nos. 2-3, 2002, co-authored with Joanne Hustead
- Virtually Exposed: Privacy and E-Health, Health Affairs Nov/Dec 2000, co-authored with Zoe Hudson
- Report on the Privacy Policies and Practices of Health Web Sites, co-authored with Zoe Hudson and Richard M. Smith for the California HealthCare Foundation, January 2000
- Exposed: A Health Privacy Primer for Consumers, co-authored with Zoe Hudson, December 1999
- Promoting Health/Protecting Privacy: A Primer, co-authored with Zoe Hudson for the California HealthCare Foundation and Consumers Union, January 1999
- “Privacy and Individual Empowerment in the Interactive Age,” a chapter in Visions of Privacy: Policy Choices for the Digital Age, eds. Colin J. Bennett and Rebecca Grant, University of Toronto Press, 1999
- Protecting Privacy to Improve Health Care, Health Affairs, Nov/Dec 1998
- Privacy and Health Information Systems: A Guide to Protecting Patient Confidentiality, co-authored with Deirdre Mulligan, Foundation for Health Care Quality, 1996
- “A Federal Right of Information Privacy,” co-authored with Jerry Berman, and included as a chapter in Computers, Ethics, and Social Values, ed. Helen Nissenbaum, Prentice Hall, 1995.
Other reports of the Health Privacy Project include: