Related Insights

CDT and Fitbit Report on Best Privacy Practices for R&D in the Wearables Industry

R&D teams in wearable technology can and should also be laboratories of privacy and ethical research best practices. Some companies, such as Fitbit, leverage the talent and expertise on their teams to embed privacy into their technology. Through collaboration with Fitbit, the Center for Democracy & Technology (CDT) examined the procedures and practices within internal R&D teams that result in positive experiences for users, while improving the analytics and hardware behind the technology. Through interviews, surveys, and other research, CDT gained insight into industry-wide trends and best practices.

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Comments on Updates to the ONC Voluntary Personal Health Record Model Privacy Notice

Privacy questions arise due to the volume and sensitivity of health data generated by consumer-focused apps, devices, and platforms, including the potential analytics uses that can be made of such data. Transparency about data practices is essential not just as a fundamental element of privacy, but is also key to engendering consumer trust, which in turn is critical to the adoption of these services. Without trust, consumers will resist using apps or devices and the industry as a whole will suffer. Overall, transparency practices should be guided by the principle that the consumer should not be surprised. The more unexpected or potentially objectionable a data collection or usage is, the greater the obligation to explain it to consumers.

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Everybody Dies: How to Preserve Your Digital Legacy

Now everyone has exhaustive and detailed records of our lives in our emails, chats, social media posts, and more. In the not too distant future, we may be able to upload our digital lives to black boxes that write our biographies. If you care about your digital life after death – and the sanity of those that will be tasked with managing it – you should take control of your digital destiny now. Here are our tips and resources for managing your digital estate.

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Health Big Data in the Commercial Context

This paper is the third in a series of three, each of which explores health big data in a different context. The first — on health big data in the government context — is available here, and the second — on health big data in the clinical context — is available here. Consumers are increasingly using mobile phone…

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Health Big Data in the Clinical Context

This paper is the second in a series of three, each of which explores health big data in a different context. The first — on health big data in the government context — is available here, and the third — on health big data in the commercial context — is available here. The health care industry, like other sectors, faces exciting new…

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Health Big Data in the Government Context

This paper is the first in a series of three, each of which explores health big data in a different context. The second — on health big data in the clinical context — is available here, and the third — on health big data in the commercial context — is available here. Data-driven and information-based systems have quickly become…

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Comments on Covered California’s Consumer Web Portal

In June 2013, Covered California provided the public with a demonstration of the consumer web portal for eligibility determination and enrollment. CDT joined with Consumers Union, the California Pan-Ethnic Health Network and other partners in praising Covered California for designing a web portal that allows consumers to browse the webpage before inputting their information. In addition, CDT submitted a…

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Comments on The Draft eHealth Patient Authorization Guidance Tool

In April 2013, the California Office of Health Information Integrity (CalOHII) released a draft version of its eHealth Patient Authorization Guidance Tool and invited public comment. The eHealth Patient Authorization Guidance Tool is an electronic decision support tool to assist health care providers in determining when patient authorization is necessary before sharing health…

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