Related Insights

Health Big Data in the Commercial Context

This paper is the third in a series of three, each of which explores health big data in a different context. The first — on health big data in the government context — is available here, and the second — on health big data in the clinical context — is available here. Consumers are increasingly using mobile phone…

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Health Big Data in the Clinical Context

This paper is the second in a series of three, each of which explores health big data in a different context. The first — on health big data in the government context — is available here, and the third — on health big data in the commercial context — is available here. The health care industry, like other sectors, faces exciting new…

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Health Big Data in the Government Context

This paper is the first in a series of three, each of which explores health big data in a different context. The second — on health big data in the clinical context — is available here, and the third — on health big data in the commercial context — is available here. Data-driven and information-based systems have quickly become…

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Comments on Covered California’s Consumer Web Portal

In June 2013, Covered California provided the public with a demonstration of the consumer web portal for eligibility determination and enrollment. CDT joined with Consumers Union, the California Pan-Ethnic Health Network and other partners in praising Covered California for designing a web portal that allows consumers to browse the webpage before inputting their information. In addition, CDT submitted a…

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Comments on The Draft eHealth Patient Authorization Guidance Tool

In April 2013, the California Office of Health Information Integrity (CalOHII) released a draft version of its eHealth Patient Authorization Guidance Tool and invited public comment. The eHealth Patient Authorization Guidance Tool is an electronic decision support tool to assist health care providers in determining when patient authorization is necessary before sharing health…

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REBOOT: Re-Examining the Strategies Needed to Successfully Adopt Health IT

In April 2013, six Republican Senators – Alexander, Burr, Coburn, Enzi, Roberts and Thune – released a white paper, “REBOOT: Re-Examining the Strategies Needed to Successfully Adopt Health IT,” and invited public comment. In the paper, the Senators identify deficiencies related to health IT implementation in five areas: (1) path toward interoperability; (2) costs; (3)…

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CDT Comments to the Agency for Healthcare Research and Quality on Information Requests

CDT supports health IT-enabled quality measurement, which involves the use of health data to assess the timeliness, completeness and appropriateness of preventive services, diagnostic services and treatment provided in health care.  A quality measurement system that enables access to clinical data for these purposes must be built in a way that ensures public trust. CDT therefore recommends that any quality…

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Safeguarding Patient-Generated Health Data on Mobile Devices

Robert Wood Johnson’s Project HealthDesign is exploring a vision of personal health records as tools for improved health decision-making by both patients and providers. In the latest phase, researchers are providing patients with smartphones to aggregate and send observations of daily living to healthcare providers, providing a richer picture of a patient’s day-to-day health status. Patients’ use…

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Rules for Business Associate Agreements Need Clarification

We remain concerned that the HIPAA Privacy Rule is still not sufficiently clear with respect to the access, use and disclosure of health information by “business associates,” entities that received personal health information in order to perform a service or function on behalf of a HIPAA covered entity like a health care provider or health plan. Consistent with FIPs, a business associate’s ability to access and disclose personal health information should be limited to what is reasonably necessary for them to fulfill their responsibilities to the covered entity. Ideally, these limits on how a business associate can access and disclose personal health information should be part of the contract or business associate agreement (BAA) between the parties. But the HIPAA Privacy Rule today does not unambiguously require BAAs to place clear limits on how business associates and their subcontractors can use and disclose patient data received from covered entities.

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