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CDT’s Health Privacy Project Releases Paper on De-identification of Personal Health Data

CDT’s Health Privacy Project today released a paper advocating the need for stronger standards for “de-identified” personal health information when used for medial research, to promote public health, or other specialized purposes. The paper notes that stronger standards are needed to ensure the “de-identified” data cannot be re-identified in order to maintain patient privacy and build trust in the health care system. CDT’s paper makes several policy recommendations on how to strengthen current de-identification standards found in the Health Insurance Portability and Accountability Act Privacy Act and increase the use of anonymized data for many health care purposes.