The HPP was founded in 1997 by Janlori Goldman, one of the country’s leading medical privacy rights advocates (and a co-founder of CDT). The mission of HPP was to foster greater public trust and confidence in the health care system, thereby enabling people to more fully engage in their own health care without putting themselves at risk for unwanted - or unwarranted - intrusions. Among its many accomplishments, HPP played an instrumental role in helping to shape the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule and was active in monitoring the Rule’s enforcement, as well as in promoting confidentiality policies and practices in the development of health information exchange networks.
The HPP conducted pioneering research and analysis on a wide array of health privacy issues, and published extensively on these issues. Notable HPP publications include: Best Principles for Health Privacy (1999); Report on the Privacy Policies and Practices of Health Web Sites (2000); “Virtually Exposed: Privacy and E-Health” (2000), published in Health Affairs; Exposed Online: Why the New Federal Health Privacy Regulation Doesn't Offer Much Protection to Internet Users (2001); The State of Health Privacy: Volumes 1 and 2 (2002); and Implementing the Federal Health Privacy Regulation in California (2002). These materials can be found on this archives page or on the main CDT health privacy page.
The HPP was folded into CDT in March 2008. Goldman continues to serve as a CDT Senior Fellow.
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