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The Impact of Federal Stimulus Efforts on the Privacy and Security of Health Information in California, California HealthCare Foundation Issue Brief

Health privacy laws govern the use and disclosure of an individual patient’s medical information. In California, health privacy involves a complex interplay between federal requirements (chiefly, regulations enacted under the Health Insurance Portability and Accountability Act of 1996 ). HIPAA regulations set the baseline for medical information protection, with specific  California laws expanding patient protection where they provide more…

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Testimony of David Sohn : H.R. 2221

Testimony of David Sohn before the Subcommittee on Commerce, Trade, and Consumer Protection, U.S. House of Representatives Committee on Energy and Commerce on “H.R. 2221, the Data Accountability and Trust Act and H.R. 1319, the Informed P2P User. 

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Use of Web Measurement Tools on Government Web Sites

The Internet is an ideal medium for citizen engagement in government, and Federal agency Web sites will have a key role to play in making government more transparent, accountable and participatory. To succeed, the operation and improvement of Federal agency Web sites must be done through the lens of protecting citizen privacy.

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Stronger Protections for, and Encouraging the Use of, De-Identified (and “Anonymized”) Health Data

1) The Importance of De-Identified Health Data 2) De-Identification, Limited Data Set Requirements of the HIPAA Privacy Rule 3) Why a Re-Examination of De-Identification Policy is Needed 4) Some Recommendations for Reform 1) The Importance of De-Identified Health Data   The trend towards adoption of health information technology (health IT) offers substantial benefits not only to individuals in terms of improving health care…

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The Dawn of the Location Enabled Web

1) Location Privacy The ubiquity of increasingly high-powered mobile devices has already spawned the Internet’s first generation of location-based services and applications. As the accuracy of location data improves and the expense of calculating and obtaining it declines, location may well come to pervade the online experience. While the increasing availability of location information paves the way for exciting new applications and services, the increasingly easy availability of location information…

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Government Information, Data.gov and Privacy Implications

1) Government Information, Data.gov and Privacy Implications 2) De-identification ad Re-Identification of Data Sets 3) Key Principles for De-Identification and Use of Data Sets 1) Government Information, Data.gov and Privacy Implications One of the first projects adopted under the Obama administration’s push for transparency was the Data.gov Web site, currently adding data sets by the hundreds of thousands. Data.gov will gather, bundle, and make publicly…

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CDT files brief urging privacy safeguards for Google Books

CDT has filed an amicus brief in the Google Books copyright lawsuit, asking for the judge to approve the proposed settlement in the case, but also to ensure that reader privacy is protected as Google implements the expanded services envisioned in the settlement. The settlement would dramatically transform Google Books from an index and finding aid into a resource for users to browse, preview, and purchase full-text access…

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