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Chapter One: Getting Started

The Internet and Privacy   Almost a century ago, Supreme Court Justice Louis Brandeis defined privacy as "the right to be let alone," which he said was one of the rights most cherished by Americans. In the Information Age, personal information has become a highly valued commodity that is captured and compiled, bought and sold in ways never…

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Statement Of The Center For Democracy & Technology Before The Senate Government Affairs Committee

Summary E-government proponents have long believed that new technologies in general and the Internet in particular can be used to enhance the way we are governed and the way in which we interact with government. It has been argued that the Internet will be able to reinvigorate the stagnating institutions of our democracy by ushering in a new era of citizen involvement, government transparency and administrative efficiency. The Center for…

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The Impact of Federal Stimulus Efforts on the Privacy and Security of Health Information in California, California HealthCare Foundation Issue Brief

Health privacy laws govern the use and disclosure of an individual patient’s medical information. In California, health privacy involves a complex interplay between federal requirements (chiefly, regulations enacted under the Health Insurance Portability and Accountability Act of 1996 ). HIPAA regulations set the baseline for medical information protection, with specific  California laws expanding patient protection where they provide more…

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Testimony of David Sohn : H.R. 2221

Testimony of David Sohn before the Subcommittee on Commerce, Trade, and Consumer Protection, U.S. House of Representatives Committee on Energy and Commerce on “H.R. 2221, the Data Accountability and Trust Act and H.R. 1319, the Informed P2P User. 

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Use of Web Measurement Tools on Government Web Sites

The Internet is an ideal medium for citizen engagement in government, and Federal agency Web sites will have a key role to play in making government more transparent, accountable and participatory. To succeed, the operation and improvement of Federal agency Web sites must be done through the lens of protecting citizen privacy.

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Stronger Protections for, and Encouraging the Use of, De-Identified (and “Anonymized”) Health Data

1) The Importance of De-Identified Health Data 2) De-Identification, Limited Data Set Requirements of the HIPAA Privacy Rule 3) Why a Re-Examination of De-Identification Policy is Needed 4) Some Recommendations for Reform 1) The Importance of De-Identified Health Data   The trend towards adoption of health information technology (health IT) offers substantial benefits not only to individuals in terms of improving health care…

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The Dawn of the Location Enabled Web

1) Location Privacy The ubiquity of increasingly high-powered mobile devices has already spawned the Internet’s first generation of location-based services and applications. As the accuracy of location data improves and the expense of calculating and obtaining it declines, location may well come to pervade the online experience. While the increasing availability of location information paves the way for exciting new applications and services, the increasingly easy availability of location information…

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