Webinar: Privacy Principles for the Age of Big Health Data





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As part of our work with the Health Data Consortium, CDT will be presenting a webinar on privacy principles for the age of big health data on April 23, 2015. More information can be found here.

Webinar Abstract: Data-driven and information-based systems have quickly become the new paradigm for American health care. Health care providers, insurers, pharmaceutical companies, academics, government entities, and also many non-traditional entrants – including patients and consumers of health “wearables” – are applying advanced analytics to large and disparate data sets to gain valuable insights on treatment, safety, efficiency, and public and personal health.  These developments offer a wealth of opportunities to increase wellness, but raise serious privacy and security questions.

To explore these implications, and to develop concrete proposals for leveraging health big data to benefit individuals and society while respecting individual privacy, CDT has joined with stakeholders and experts to examine these issues from three different perspectives: clinical and administrative data generated by health care providers and payers; health data in commercial context, such as that contributed by consumers using the Internet and other consumer-facing technologies; and health data collected by federal, state, and local governments.  CDT’s Deputy Director of Consumer Privacy Project, Michelle DeMooy and Gautam Hans, Policy Counsel and Director of CDT’s San Francisco office, will provide an overview of those findings and recommendations.

  • By the end of the webinar, attendees will have gained an understanding of the opportunities and challenges in privacy and security that big data brings to the health care community.
  • Attendees will understand how the framework provided by the Fair Information Practice Principles (FIPPs) can be applied to modern health data in clinical, government, and patient-generated contexts.