Your genes contain information that literally defines who you are. Scientists are eagerly exploring new benefits of that data, while policymakers are taking steps to ensure it is not misused. What are the risks associated with genetic privacy? What are your rights?
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Recently, the Council for Responsible Genetics published a "Genetic Privacy Manual." The online guide is a comprehensive source of information for consumers about the use of genetic information in fields ranging from human health and reproduction to the criminal justice system. The guide delves into the science of genetic testing and summarizes legal protections such as the relatively new Genetic Information Nondiscrimination Act (GINA).