Health Privacy

The security of personal health and healthcare data is an area of great societal importance, raising questions about privacy rights, ethics, and fair use of information. As health information, especially information that falls outside of federal privacy laws, is collected and stored in multiple venues — doctors’ offices, hospitals, pharmacies, walk-in clinics, blood and organ donor banks, activity trackers, and DNA mail-order test kits, to name a few — citizens should have greater knowledge of who holds their health-related data, whether it is shared or sold, how secure it is, how it is used, and whether it is being used for commercial gain.

CDT advocates for increased individual control over health and wellness-related information, inside and outside regulatory protections, and for constructive technical solutions inside of companies.

Recent Content

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CDT Provides Testimony for California Privacy Protection Agency on Automated Decisionmaking, Limited Sensitive Uses of Data + More

A brief by CDT's Civic Tech team, entitled "The Chilling Effect of Student Monitoring: Disproportionate Impacts and Mental Health Risks." White document on a dark grey background.

The Chilling Effect of Student Monitoring: Disproportionate Impacts and Mental Health Risks

A brief by CDT's Civic Tech team, entitled "Preserving Student Privacy and Well-Being When Conducting Mental Health Surveys." White document on a dark grey background.

Preserving Student Privacy and Well-Being When Conducting Mental Health Surveys

CDT submitted comments to CMS, urging them to adopt necessary limits on data sharing for automated benefits determinations. White document on a dark grey background.

CDT Comments Urging CMS to Develop Robust Guidance on Data Sharing

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EVV Threatens Disabled People’s Privacy and Dignity — Whether We Need Care, or Work as Professional Caregivers

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Placing Equity at the Center of Health Care & Technology

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