It is widely recognized that developments in health information technology (HIT) have the potential to improve health care quality, reduce costs and empower consumers to play a greater role in their own care. However, little progress has been made on resolving the privacy issues associated with the growing liquidity of personally identifiable health information.
CDT’s Health Privacy Project will take on key policy questions, including: the proper role of notice and consent, the right of patients to access their own health records in electronic formats, identification and authentication, secondary uses, and enforcement mechanisms. It will address both the traditional exchange of records among providers and payers, as well as new consumer access services and Personal Health Records.
Senate Approves Vital Health Privacy Bill - CDT applauds the Senate's passage of HR 293, the Genetic Information Nondiscrimination Act of 2007 (GINA) by unanimous consent. The House is expected to quickly pass the measure. The bill represents a significant step forward in protecting health privacy because it prohibits the use of genetic information by employers when making hiring decisions or by health insurers when making coverage decisions or adjusting premiums. Under GINA, employers and insurers also would not be allowed to impose genetic testing requirements. CDT is urging the President to quickly sign the bill into law. April 25, 2008
Major Player Emerges on Health Information Technology and Privacy - CDT announced today it is joining forces with the Health Privacy Project, creating a major voice to address the privacy challenges posed by the electronic exchange of personal health information. CDT’s Health Privacy Project will take on key policy questions, including: the proper role of notice and consent, the right of patients to access their own health records in electronic formats, identification and authentication, secondary uses, and enforcement mechanisms. It will address both the traditional exchange of records among providers and payers, as well as new consumer access services and Personal Health Records. March 11, 2008
Share this article"Best Practices" for Personal Health Records Released - CDT joined the Health Privacy Project, the California Healthcare Foundation, and a number of prominent employers to put out "Best Practices" guidelines for employers considering adoption of Personal Health Records (PHRs) for their employees. The best practices document addresses a void in policy and practice guidelines for employers and is intended to ensure the privacy and confidentiality of employee health records. December 19, 2007
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